Joe: has had 6 ear infections in 3 months and currently has one, he gets his 3rd set of PE tubes on Tuesday/ Otherwise Joe continues to do well
Jacob: continue to have issues and keeps me super busy. He now has two huge diagnosis one he has hypogammaglobulinemia it is an immune system disorder that falls under (Common variable immunodeficiency) (CVID) Jacob also has low to no antibody response so like you or I have a normal system Jacob has little to no system which is why when he's sick he lands us at ACH. Jacob does weekly IVIG and daily prophylaxis antibiotics. Since Jacob has CVID he often wears a mask when out in public and especially when we go around a big crowd. Jacob also started 3 months ago on botox for spaciticity for his cerebral palsy. Jacob rocking his weekly IVIG infusion.
Tomorrow we have several appts with our amazing team at ACH: first we start off in the dental clinic with both boys then Jacob will get his botox and then we end in pulmonology for both boys. Due to Jacob having CVID he will have to take a different abx prior to any/all dental care. We meet our amazing new pulmo doctor tomorrow we are very familiar with him and he has signed off on things that Jacob needs.
Bob and I are doing well, we are in the process of hiring a contractor to put on our new roof. We keep busy with both of our jobs, the boys and our garden.
No comments:
Post a Comment