Exactly one year ago this month our lives changed forever. Jacob got diagnosed with "hypogammaglobulinemia" and "low to no antibody response" also known as CVID. Since Jacob has both diagnoses he was doing weekly sub q IG (immunoglobuline) due to some recurrent issues we did our monthly call with his team 2 weeks ago and it was decided that it was best to take him off Sub q IG and switch him to IVIG. Jacob had his first IVIG treatment this past Thursday and did pretty good except for a few things which his team is aware of. He continues to amaze me with his fight with this disease.
Joe is doing well since he got his new set of tubes and is such a good caring loving brother to Jacob. On Thursday when Jacob did his infusion he called and checked on him. He got his 4 year old shots and his flu shot just recently and did awesome with it.
Bob and I are doing good keeping busy, we have had our new roof exactly a month now and it is beautiful. We did get to go on a family vacation a few weeks ago and it was nice to get away from reality of having a medically complex child that requires 24 hour care.
This Thanksgiving we are hosting with our family and we are planning for the regulars to attend. We are so thankful for so many things. We are also planning on a great holiday season as my older sister and brother in law are coming home for Christmas we are super excited to see them, The week after Thanksgiving we return to Arkansas Childrens for clinic including meeting with our pulmonary team, and the neurology team for Jacob to get botox and then doing his IVIG infusion in the hem/onc unit.
