Thursday, April 7, 2016

update on the boys and life

Life has been so crazy busy that I haven't gotten a chance to update. We have been in Little Rock a ton lately. I have also been in constant contact with Jacob's medical team. This video that I am posting is what we call the ride. It is a vest airway clearance system. Jacob's lungs are pretty weak and so this vest system literally shakes the chest to help him cough or clear his secretions out. Jacob also has a new diagnosis of Bronchiomalacia it is softening of the airway. His left lung is definitely a lot weaker and more scarred than his right now. Jacob also a month ago today decided that he would give mommy and daddy a scare and went into respiratory distress. Thank goodness we know what to watch for in the days  prior and so we headed to ACH Er and he got IV fluids, along with several respiratory meds and got admitted for 4 days. We have an amazing pulmonologist that knows that I will call her when we have issues with him and so she had already talked to the attending and so it made it so much easier on us.  Jacob also just had his 7th surgery last week and we once again got admitted this time for precautionary reasons considering Jacob's history.
Joe is doing well. He loves playing with toys and loves going to daycare everyday. He has an ear infection  right now. He is definitely a big talker and says his ABC's.  Lately he is big in to tractor's. Everyday as we drive to school he says wanna see tractors mommy.
Bobby and I are doing well. We have been trying to keep busy. We have gone out on the boat several times and just finished remodeling our kitchen. In the next few weeks we plan to plant our garden and set up the boys water table and swing set.