Friday, September 4, 2015

Update on the boys

Wow, time flies when your having fun. Seriously I can't believe 2 years ago that my sweet precious strong handsome miracles were born. The last 2 years have been crazy busy with so many ups and downs. God has blessed us being their parent's. I can't wait to see what this year has in store. As of right now we have one big surgical procedure planned for Jacob that is October 6th, Jacob recently almost 2 months ago got diagnosed with EOE (Eosinophilic Esophagitis) it is Eosinophilic (ee-uh-sin-uh-fil-ik) esophagitis (EoE) is a recently recognized allergic/immune condition. A person with EoE will have inflammation or swelling of the esophagus. The esophagus is the tube that sends food from the mouth to the stomach. Jacob is allergic to soy, dairy, and beef. So we are constantly having to watch everything he takes in by mouth. Along with EoE he has had strep throat 5 times this year and so while he is under for his EDG with biopsies they are doing a T&A along with replacing his PE tubes that are full of granulation tissue. Jacob's throat from the EoE is pretty  bad. Jacob also just qualified for a portable suction machine that will make our lives a tad bit easier. Jacob requires a lot of suction due to his chronic lung disease, the cerebal palsy, and the EoE. Both boys are in daycare full time and they love it, they both go to a special daycare that is for kids with medical or developmental issues and you have to qualify to go to this daycare. It has been a blessing and they are like family. The month of September is already plenty busy tomorrow the boys and I are going on a daytrip with one of my best friends to go hiking for the day. Next weekend is DH's family reunion, the 19th is our only free weekend in September and then the 26th is DH's company picnic and then we are just relaxing at home the weekend of the 3rd of October as Jacob has his surgery on the 6th and we be inpatient probably 2 nights. The 24th of September we see Jacob's amazing GI Dr Prince just for a follow up since we have had to change some med doses around. We are constantly busy or on the road. Tomorrow I can't wait to get away for the day of course we have to pack all of Jacob's medical supplies. Hope that everyone is doing well. 

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